23 years, beginning in infancy, four different benzos (Nitrazepam, Ativan, Klonopin and Clobazam),
zero seizure control,
high dependency, still being prescribed to babies and young children
despite little to no evidence of efficacy
THE REAL TIGER MOTHERS take charge

The Price of Addiction
(deductible finally met in November because of MRI, etc., catalogued in The United States Medical System, Part One in a Series Through Photos
co-pay for drug over eight years has ranged from $0 to $780 according to the whims
of the United States Capitalist Medical System
where patients are consumers and the HHS Secretary is Big Pharma
Never Go Backwards
(went backwards at behest of Neurology BigWigs one year ago, a seriously fucked up decision)
backwards means once you start to wean, don’t jack up the dose
backwards means after weaning 80% over three years, you jack up the dose to a larger amount than four years previously
#nogood
#neveragain
#tigermothersknowbest
#trustyourgut

This is the place where poetry, politics, caregiving, disability and the ocean intersect with the body. That body is mine and yours.

A podcast about The Grit and Grace of Caregiving, hosted by me and Jason Lehmbeck.